Just a brief update again, I swear I’ll be back in the game tomorrow.
I saw my new new oncologist today. I do not need any radiation or chemotherapy. Well, he was obligated to offer chemo, but the standard for LMS would involve a lot of health risks and at least 12 days in the hospital for about a 1% decrease in my risk of recurrence. I declined.
Leiomyosarcoma is a plain old bad luck cancer. They don’t even know of any risk factors, it just happens. It’s practically unheard of for LMS to initially present in the lungs anyway, but mine was caught at a fraction of the size that they’re usually found.
If I didn’t get CT scans for kidney stones so often, it could have been years before I showed symptoms and by then, my prognosis would have been grim at best. I never thought I would be grateful for kidney stones, but they have literally saved my life.
LMS has a 30-50% recurrence rate, so I will be getting PET scans for a long time, if not the rest of my life, but that is a small price to pay. It’s a good day today.